Myasthenia Gravis

[securespark]

Those of you who may have been following my double vision problem may be interested (or not!!) to hear that I have seen a private consultant and he is (99%) sure I have this condition. I have to have a blood test (due tomorrow, and returned in two weeks time) to confirm it. If the test is negative, then I have something even rarer...Trust me!

 

[Richardp]

Glad to read that life expectancy is not lessened by the disorder and its many women under 40 that get it!!!
Joking aside securespark, I hope you get it sorted mate.
I'll read up abit more about it.
cheers
Richard

 

[Steve]

double vision?

secure opens a 4 gang lightswitch - "wow, look at all them lives!"

only joking buddy, did the doc say it was treatable?

 

[joe-90]

This is what Wikipedia says:


"With treatment, most patients have a near-normal quality of life and no significant problems."


So be confident and it'll all work out.

 

[securespark]

Thanks everybody.

The doc said there are two types: one that is limited to the eye muscles, and another that attacks all nerve endings. The second is more serious. However, I'm keeping my fingers crossed until March 07. If I reach that point, and the condition has not spread by then, then it will be unlikely to.

He also said that it is stress-related, so I'll have to take it easy.

 

[Richardp]

Thanks everybody.

The doc said there are two types: one that is limited to the eye muscles, and another that attacks all nerve endings. The second is more serious. However, I'm keeping my fingers crossed until March 07. If I reach that point, and the condition has not spread by then, then it will be unlikely to.

He also said that it is stress-related, so I'll have to take it easy.

have a rum an shrub my granny swore by it.
don't get involved in any arguments.
watch out for markie, he's gagging for an argument!!

 

[securespark]

Not going to argue anymore - look what it did for Ban....

 

[securespark]

Sorry, Crafty...missed your Q.

Yes, it's probably treatable with one of two drugs. Don't know much more than that at the moment.

 

[securespark]

Hi Mason


I went private having persuaded my employers it would be better if I were diagnosed sooner rather than later.

I don't agree with private care, but in this case it has been the best thing I've ever done.

The guy who saw me said that usually, it takes 2.5 yrs to diagnose MG, because it is so difficult to pinpoint a diagnosis - it is known by many health professionals as "The Great Mimic".

I have had time off for out & in-patients visits, all fully paid for.

I have got a prism lens to cope with the diplopia, and it is hard at times, because the condition is fatigue-related, so the later in the day it gets, the worse my vision becomes. But it is manageable, after a fashion.

Nice to know I'm not alone....let's hope your diagnosis goes OK. Do you have any ideas, or are you waiting on tests, too?

 

[mlb3c]

was wondering.....were you referring to "Ocular" MG.....? Was giving a read and although it can be treated, but not cured, it is a type of MG affecting usually the vision only. sorry, but I was concerned.....either way because the other type is quite serious and can be life threatening. was concerned is all.

 

[securespark]

Yes, at the moment I have suspected Ocular MG. However, it does not mean that it will not spread to the rest of my body. But, if I get beyond March 2007 with no signs of it spreading, the liklehood of that happening will vastly diminish, but not altogether.

 

[masona]

securespark,

I have asked admins to delete my posts & tidy up the topic here to stop any confusing and I'll start a new topic later on.

Remember, you must de-stress and relax.

 

[securespark]

Cheers, mason! I don't know if anyone's said this to you before, but you are very reassuring!

I have decided not to fret - as if it would help if I did!

So I'm going to "chill out"...!